Dementia Spotlight Foundation envisions a world that does not fear dementia. We see instead, communities capable of embracing dementia as a disability and supporting the needs experienced by individuals and families living with a changing brain.
A basic question, asked by countless families after a Dementia diagnosis. But, it’s this very question, these two simple words that spurred the launch of a foundation dedicated to providing resources, direction and actionable answers. Simply, we’re here to help with “what now?”
With a focus on LIFE before loss, RIGHTS before research, and CARE before cure, we are dedicated to changing perspective and improving life experiences of individuals, families, and communities affected by the increasing and always changing condition of dementia.
We believe in the unlimited possibility of maintaining rewarding and meaningful life for those directly affected by dementia.
Dementia Spotlight sponsors and provides funding for the United States Dementia Action Alliance. Inclusive of People Living with Dementia, this volunteer coalition is engaged in changing our nation’s understanding and attitudes about dementia. Knowing that people living with dementia (PLWD) have a wealth of knowledge, experience, strength and hope to share, we sponsored 10 PLWD and their care partners to attend Dementia Action Alliance’s first North American Dementia Conference in June 2017.
While research holds hope for us all, the fears and stigmas of dementia as it is currently perceived disempower and isolate families and individuals diagnosed every day. With over 8.3 million people who will be living with dementia by 2030, THIS HAS TO STOP! Dementia is a disability and individuals have a right to community accommodations that can allow them to continue to live engaged and meaningful lives.
If you are living with dementia...YOU ARE NOT ALONE. We encourage individuals and family members to connect with others who know how it feels. Dementia
Spotlight is grateful to sponsor dementia advocate Robert Bowles. “Living Beyond Diagnosis” with Lewy Body Dementia, Robert is shining his SPOTLIGHT on the need and right for dementia friendly communities across the nation. His collaborative effort is creating a culture change of understanding, respect and support for families living with the disability of dementia.
Dementia is a complex condition. It requires courage and a shift in thinking, understanding, and planning. Dementia demands new interpersonal skills, and above all, willingness to LEARN MORE. In the short time that Dementia Spotlight Foundation had been in existence, we have identified and collaborated with many individuals and organizations that provide outstanding training to improve care partnerships with People Living with Dementia. These include the following:
Leading Age Georgia “is the trusted voice for not-for-profit and other mission driven organizations dedicated to providing quality housing healthcare and community-based services for Georgia seniors.”
The Eden Alternative’s mission is to improve the well being of elders and their care partners by transforming the communities in which they live and work. Their vision is to eliminate loneliness, helplessness and boredom -- the three plagues that cause suffering for our elders. The Eden Alternative offers “a variety of educational experiences, designed to help individuals revolutionize the culture of care and aging in their organizations and the broader community.”
The Alzheimer's Music Fest held their sixth annual music festival in 2017. Vince Zangaro, the founder of the festival, has been his Pop’s care partner for 15 years. The goal of the music festival is to “raise funds for families with limited financial resources, increase awareness about Alzheimer's disease and dementia, and create a community of support for these families.” Dementia Spotlight Foundation was the proud recipient of the money raised at the 2017 music festival. We are partnering with The Leona M. Kitchen Foundation to disperse these funds to help care partners. The Leona M. Kitchen Foundation funds short-term respite care to relieve caregivers from the demands of caring for people living with dementia and offer education and support for individuals and communities on how to best cope with dementia.
Teepa Snow is a nationally and internationally renowned trainer and speaker on dementia. Her model is known as Positive Approach® to Care (PAC). “Most education models teach the WHAT of dementia including mostly facts and information. PAC takes it a step further and teaches the HOW to live in relationship with a changing brain. Teepa's Snow's relational approach and hands on skill techniques offer the interpersonal skills needed to improve quality of life for everyone involved.” Teepa’s training is available in person, by webinar, or by DVD. Many of her talks about HOW to be with a person with a changing brain can be found on YouTube.